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Internet Resources
AGASTAlliance of Grandparents, A Support in Tragedywww.agast.org
A Heartbreaking ChoiceFor those parents who choose to interrupt their pregnancies after poor prenatal diagnosis, there is very little in the way of support programs. With this site and the dedication of courageous parents willing to reach out, we hope to create a safe haven of encouragement and validation. http://www.aheartbreakingchoice.com/
Childloss.comA Christian-based web site offering email support, chat schedules and 24 hour paging. They also design, free of charge, full web pages for those that have lost children. A listing is available of support volunteers, that are available around the clock, to help others with a particular type of loss. The site also offers a poetry page (new), in which others can post a poem in memory of their lost child. The site consists of two parts: one for infant/pregnancy loss, and another for all types of loss, for children of any age. www.childloss.com
A Place to RememberCommitted to publishing and providing uplifting support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby. A forum in a bulletin board type format is available. www.aplacetoremember.com
Loss in Multiple BirthDr. Beth Pector, physician and bereaved mother, developed the following web pages that include resources, poetry and articles useful to parents & professionals helping families dealing with loss or complications in multiple birth. www.geocities.com/synspectrum/multiplicity www.geocities.com/synspectrum/articles www.geocities.com/synspectrum/poetry
Carrying To TermOffering support for parents who have made the decision to continue a pregnancy after a devastating prenatal diagnosis. http://www.geocities.com/tabris02
Center for Loss in Multiple Birth (CLIMB), Inc.By and for parents throughout the United States, Canada and beyond who have experienced the death of one or more, both or all their children during a twin, triplet or higher multiple pregnancy, at birth, or in infancy or childhood...and caring others. They offer a contact network and have resources for special situations (pregnant now after a multiple has died in-utero, for example). They also provide a newsletter, and you may request it via email. Based in Alaska. P.O. Box 91377, Anchorage AK 99509, 907/ 222-5321 E-mail:climb@pobox.alaska.net.www.climb-support.org
The Compassionate FriendsA national parent-to-parent support group. LOTS of valuable information at this site for parents who have lost children of any age under any circumstance. There is information on local chapters available as well. "The mission of The Compassionate Friends is to assist families in the positive resolution of grief following the death of a child and to provide information to help others be supportive." www.compassionatefriends.org
Elena's Inspiration - The Shining Light FundProviding customized birthstone Mother's Bracelets, free of charge, to moms who have suffered the loss of a child through miscarriage, stillbirth or neonatal death. This service was started by a couple who've endured their own loss of a daughter, Elena. The founders believe that, "It's so important for women to have a tangible remembrance of their children." http://www.elenasinspiration.com/shining_light_fund.htm
Fathers...who have experienced stillbirth, infant death, or miscarriage walk a uniquely sorrowful and challenging path. Still Fathers is a new resource for such fathers, providing support, encouragement, and a place to touch base. http://www.stillfathers.org/
GriefNetGriefNet is an Internet community of persons dealing with grief, death, and major loss. www.griefnet.org
Hannah's PrayerHannah's Prayer desires to provide Christian based support and encouragement to couples around the world who are struggling with the pain of "fertility challenges" including infertility, pregnancy loss or early infant death. They also have a newsletter. www.hannah.org
Honored BabiesA place where mothers whose babies have died (miscarriage, ectopic pregnancy, stillbirth, neonatal death, infancy death, and/or pregnancy termination) can add their babies to an Online Memorial, join an Online Support Group Email List (there's also one for Grandmothers), and submit their "entire story" for book publication. Also offered is a Resource Center and Keepsakes. www.honoredbabies.org
HygeiaOnline Journal Hygeia is listed as "An Online Journal for Pregnancy and Neonatal Loss A New Resource for Women's Health and Healing." Dr. Berman intends Hygeia to be an interactive online journal with an approach to healing via three avenues. www.hygeia.org
InfanlosInfanlos is a mailing list on the Internet that allows people with the common bond of pregnancy/infant loss to share experiences. To subscribe, send e-mail to the address listed below and in the body of the text, type: subscribe infanlos end. www.geocities.com/Heartland/8592
Information For Genetic ProfessionalsInformation on genetics. www.kumc.edu/gec/geneinfo.html
Online Directory of Genetic ResourcesOnline Directory of Genetic ResourcesThe Alliance can also provide referrals for conditions not listed on this page. If you cannot find the information you are seeking, or if you have any questions or comments, please contact the Alliance by phone at 1-800-336-GENE.
M.I.S.S. (Mothers In Sympathy & Support)The mission of M.I.S.S. is to allow a safe haven for parents to share their grief after the death of a child. MISS provides support to parents enduring the tragedy of stillbirth, neonatal death and infant death from any cause including SIDS, congenital anomalies, trisomy 13. Grief education for parents and professionals is our main focus. www.misschildren.orgE-mail: kim@missfoundation.org Phone: 209-725-9241 Wee Care is under the umbrella of M.I.S.S. It is the Houston chapter. Our website address is WeeCareHouston.org
Missing GraceThis site has an abundance of material to help bereaved parents in the grieving process. It provides many valuable resources:*Personal online support *Medical information to answer questions related to the cause and future prevention of stillbirth *Information on ways to take action in your state to promote stillbirth awareness *Descriptive lists of national and international support groups Missig Grace wants parents to be well informed so they can take preventative measures and a proactive role in their pregnancy. Grace's web site hopes that they will offer comfort, hope and encouragement for those who have been afflicted by the pain of losing a baby at any stage of development. www.MissingGrace.com
Mommies Enduring Neonatal Death M.E.N.D.is a Christian not-for-profit corporation whose purpose is to reach out to those who have lost a child due to miscarriage, stillbirth or early infant death and offer a way to share experiences and information through meetings, the bi-monthly newsletter, and our Internet web site. www.mend.org
MyMolarPregnancy.comA website providing information, personal stories, and support for women who have lost a child due to molar pregnancy, also known as gestational trophoblastic disease. In this rare condition, malignant cancer cells begin to grow in the uterus at conception (complete molar) or thereafter (partial molar). The pregnancy must be terminated immediately and the woman must undergoing monthly monitoring for up to a year to prevent the return of the cancerous tissue, during which time she cannot try to get pregnant again. Thus, this condition results not only in the grief of loss but also in the fear of cancer. mymolarpregnancy.com
Pain, Heartache, and HopeMemorial and Support website for miscarriage, stillbirth, and loss of a child. On-line book with true stories of real women coping with loss and infertility. www.pain-heartache-hope.com
Perinatal LossA WEB catalog of bereavement resources that include beautiful, tiny urns to hold a baby's ashes, personalized announcement cards, and special albums for keeping precious memories (such as photographs, a lock of hair, footprints, etc.), Many handcrafted items that can help you honor your baby's short life. www.tearsoup.comPregnancy LossA website devoted to miscarriage medical information and support. Medical information includes questions and answers concerning the causes, symptoms, diagnosis, treatment and recovery involved in the stages of a misscariage. A moderated bulletin board is also featured to share thoughts and feelings with others, as well as other features to assist in the healing process. www.pregnancyloss.info
SHARE Pregnancy and Infant Loss Support, Inc.SHARE is a not-for-profit nondenominational organization providing support to those whose lives are touched by the tragic death of a baby through early pregnancy loss, stillbirth or newborn death. All information packets, correspondence, and support are free of charge for bereaved parents. www.nationalshareoffice.com
SIDS-Western Australia/SANDSA support group based in Australia for parents who experience loss from miscarriage, stillbirth, neonatal death, SIDS - Suddent Infant Death, and children who have died from any cause up to the age of two. Features poetry, grief tips, subsequent pregnancy information, and much more. www.sandswa.org.au
SPALS: Subsequent Pregnancy After LossSPALS is a warm and compassionate group of people who have experienced the loss of a child due to miscarriage, selective termination, stillbirth, neonatal death, sudden infant death, or accidental death. In addition to information given on the page, there is a SPALS list people can join. http://www.spals.com
Walking With AngelsWalking With Angels (WWA) is an Internet support group for bereaved parents. We offer understanding, a willingness to listen without judgment. Our primary goal is to assist parents in understanding and working through their grief at the own pace. We offer hope and heartfelt compassion. http://walkingwithangels.info Download and print an Acrobat version of this content... If the Acrobat Reader is not already installed on your computer system, it is available free of charge from Adobe by clicking here. |
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